The last three days were filled with lots of heavy lifting, heavy learning, and heavy sleeping. Each day I was so tired I went to sleep at 8pm and slept right through to 7am. The process of being a carer is physically exhausting, and we also had to learn all the technical things about his … [Read more…]

Braai time today. Colin is doing well, and here is a vid of him feeding himself: Colin is using a special plate and a special spoon, and he is getting so strong in his arm that the nurses just cut the food for him and leave him alone to eat his whole meal by himself. … [Read more…]

… and suddenly, after 90 days of really hard work, Colin has made an overnight quantum leap forward. So far, Colin can feed himself with his left hand (using a few aids), he can balance himself in a sitting position (if centered first), he can use both his shoulders, he can use his shoulders to … [Read more…]

So much good news again today. Colin is doing very well, and is really enjoying exercising his arm using his tablet. Things seem to be going on well, and there is lots of sunshine on the horison. I am attending the carer training with a carer who will be our helper for Colin, and that … [Read more…]

Today Colin said he was having a good day. I have not seen him today, and I am missing him terribly. I am so tired I am weepy, even though there is nothing wrong. I just feel tired and sad. I feel undone and hopeless, and I feel devastated for Colin that the reality of … [Read more…]

I find that I am tired. Not completely exhausted, more like my brain feels tired and doesn’t work properly. There are so many things I need to do, so much admin still – more and more new, so that even when I complete something there is always more. More people to speak to, more information … [Read more…]

Christmas came early this year. This week has actually been getting better and better. Colin got his ripple mattress which will assist greatly with not getting bed sores. This is a huge win for him. He is currently struggling a bit with the cushion of his chair, and tonight I noticed that he is starting … [Read more…]

Lost of business again today. My Dad went off to a lovely family gathering down in Ramsgate, and I dropped him off at the airport this morning. When I got to Colin, there was discussion about the urgency of making the structural changes to the house, and appointing a carer (or even 2) as soon … [Read more…]

I just got back from the rehab from seeing Colin. He had his Urodynamic study today, and there are no issues with his bladder or kidneys. He has a capacity of 546mls, so that is a good thing. Some quads have a very small bladder due to various reasons, and so there is not an … [Read more…]