Colin wasn’t able to sleep properly last night and needed his cpap mask for sleeping. Unfortunately, it was ruined in the ICU. It would have cost the same to repair as to get a new one, and we wanted to wait and see what would happen, but it became an urgent matter last night. The … [Read more…]
Colin had a good day today. I shaved his face again, and hopefully we will be able to get rid of the neck-beard once the cone of shame and even trachy are out. I am still too nervous to shave too close in case I make him cough. They are making noises about removing the … [Read more…]
So much good stuff today. When I arrived today, Colin was being fitted for an electric wheelchair. It has been customised to his specifications – higher back, longer legs, etc. He had a ball trying it out and learning to work the joystick with his left hand which is still not all that mobile. He … [Read more…]
Not much to add today, except that Colin got me back. 😀 When we were first married, and he was going to kiss me, I coughed into his mouth. I didn’t mean to, it just happened. Now, I lean over him often to kiss him, especially when I arrive or leave, and he sometimes has … [Read more…]
Today I am grateful for Colin – the love of my life. Spent a lovely day with him, just being together. He is having quite bad spasms in his legs, and although the Doc has upped his meds for that, he is really struggling with it. One of the residents there has some issue with … [Read more…]
Another lovely day with my lovely. He had another surprise for me – he is able to move his left thumb just the teeniest bit. Today, I got to do his bladder washout for the first time. You essentially syringe a specific amount of saline into the catheter, and then suck it back out about … [Read more…]
Colin was ok today. He had quite a few visitors, and all the social activity and talking made him a bit tired so he was not able to stay in the chair for the hour as he got dizzy. It is more difficult for him to speak from a sitting position, and he completely First, … [Read more…]
Today was a really lovely day. I bought a headphone splitter so that Colin and I could watch a movies together on my laptop. We always used to watch Simpsons episodes when we went to bed so it could sort of lull us to sleep. This is one of the parts of our togetherness that … [Read more…]
This one may help with the keyboard operation. Way too early, but this one looks kinda useful: This knife-thingy would need a different handle, but something like this may be helpful when his strength returns so we can eat by himself with little or no asisstance. Here are some other types of cutlery he may … [Read more…]
Another good day today. But a very long day. It took me all day to go across town to take care of some admin near the original hospital, as well as at the original hospital. It was raining all day which also means that everyone had taken an extra dose of stupid pills and the … [Read more…]