Dad flying his latest little plane

Dad has not been able to fly his planes for years now, and when he moved, he gave them all away to keen people. However, even though he can’t really see well enough to even build them anymore, he has built a small rubber-band one which we sometimes fly for a few seconds on the … [Read more…]

Wellington’s Day

Colin, my bestest in the whole world, got me a special present that arrived this morning. Knowing that I am an original Star Wars fanboy, and that I do most of the DIY around the house – specially now – he got me THE perfect gift. It is something I saw on a forum or … [Read more…]


Colin and I almost have a language of our own. It is made up of a lot of in-jokes, phrases from Simpsons episodes, and a mixture of other things that make no sense to anyone else listening. This is partly why we have so much fun – we can make the other laugh with a … [Read more…]

Ups and Downs

If nothing else, our journey is not boring. When to worry and what to do Colin has had nuclear diarrhea for the last two days, and it was so bad this morning that I spent almost three quarters of an hour cleaning the floor around the bed, the bed, the under-sheet, and Colin’s legs and … [Read more…]

Day 206 and holding a sandwich

Colin has been working really hard on moving his thumb on his left hand. He is sometimes able to make it grip things like strawberries and biltong. It is because of his diligent work, and sweat and tears every day with his physio that he is able to regain strength when he has a flicker … [Read more…]

Mourning the imagined life

Here is an excerpt from a blog I stumbled across: “When you love someone, you have dreams for them even though you don’t realize it. And when a caregiving journey begins, particularly for someone with a long term or incurable illness, those dreams die. And you can experience a very real sense of grief and … [Read more…]

Klebsiella Pneumoniae

Having had to learn more than I ever hoped I would need to know about medical stuffs, I am also all too aware of drug resistant infections. My Mom had methicillin-resistant staphylococcus aureus (MRSA) and Necrotizing Fasciitis, so we have had a brush with the real danger of things that can’t be cured by medicine, … [Read more…]

Day 170 and falling out of bed

This morning when I woke up and got up I noticed that Colin had spasm-d himself almost entirely off the bed. His bum was three quarters on still, but both his legs were hanging off and he was ice cold to the touch. After helping him up onto the bed again, and covering him up … [Read more…]