Colin and I almost have a language of our own. It is made up of a lot of in-jokes, phrases from Simpsons episodes, and a mixture of other things that make no sense to anyone else listening. This is partly why we have so much fun – we can make the other laugh with a … [Read more…]
If nothing else, our journey is not boring. When to worry and what to do Colin has had nuclear diarrhea for the last two days, and it was so bad this morning that I spent almost three quarters of an hour cleaning the floor around the bed, the bed, the under-sheet, and Colin’s legs and … [Read more…]
Colin has been working really hard on moving his thumb on his left hand. He is sometimes able to make it grip things like strawberries and biltong. It is because of his diligent work, and sweat and tears every day with his physio that he is able to regain strength when he has a flicker … [Read more…]
Colin and I are constantly on the look-out for accessibility tweaks we can apply in our house. We start with ideas based on some others have used, an idea, or a need. Here are a few of ours so far: Cord for Swing-away-arm Colin doesn’t have the strength to push the swing-away-arm of his chair … [Read more…]
Here is an excerpt from a blog I stumbled across: “When you love someone, you have dreams for them even though you don’t realize it. And when a caregiving journey begins, particularly for someone with a long term or incurable illness, those dreams die. And you can experience a very real sense of grief and … [Read more…]
It is day 192, and Colin was very pleased to be able to show us another small surprise – he cam move his right arm a little! Woohoo! This is how his left arm started, and although the strength in his right arm is not yet built up, this is an extremely exciting occurrence. This … [Read more…]
Having had to learn more than I ever hoped I would need to know about medical stuffs, I am also all too aware of drug resistant infections. My Mom had methicillin-resistant staphylococcus aureus (MRSA) and Necrotizing Fasciitis, so we have had a brush with the real danger of things that can’t be cured by medicine, … [Read more…]
The last few weeks have been a steep learning curve. Again. Although the trailer is much easier to load and unload, safer, easier to travel with, and just a better solution, it is yet another new thing. I always thought I was good with change, and could pretty much cope with most things, but this … [Read more…]
Yaaay! Today our trailer arrived. It was specially made for us, using the specs of the chair itself. It will make life SO much easier, and will also be better for the chair as water and mud from the road will not splash up onto the chair from underneath. The other rack was no longer … [Read more…]
This morning when I woke up and got up I noticed that Colin had spasm-d himself almost entirely off the bed. His bum was three quarters on still, but both his legs were hanging off and he was ice cold to the touch. After helping him up onto the bed again, and covering him up … [Read more…]