I just got back from the rehab from seeing Colin. He had his Urodynamic study today, and there are no issues with his bladder or kidneys. He has a capacity of 546mls, so that is a good thing. Some quads have a very small bladder due to various reasons, and so there is not an … [Read more…]

Colin has been feeling much better over the last few days, although we will have to always be alert to watch for AD. He still have a variable appetite, and sometimes eats almost nothing for days. We are starting to plan the home changes, and I have to start getting quotes for the changes we … [Read more…]

The home visit today went well. We have a few structural alterations to make to the house, but it seems manageable. We have to widen the bathroom door frame so it will allow a wheelchair through (both bathrooms are much narrower than everything else in the house, and we will have to also redo the … [Read more…]

Colin has not been 100% well, and his blood pressure has been very low. This morning, he felt so ill he had blurred vision. But there is a spot of good news. He will come tomorrow morning with the social worker and the occupational therapist to see the house to advise us on how we … [Read more…]

After we left Colin last night, he took a little turn for the worse, and although he had a high temperature, he felt so cold that he was shivering, and even his teeth were chattering. Apparently it is a neuropathic pain reflex. He didn’t like that the nurses kept taking his blankets off so they … [Read more…]

Colin is ill again. He still have the infection which made him have to go back to the ICU this last time. Luckily, we caught it early enough, and he is on the same antibiotics as he was on in the ICU and hopefully he will be feeling better by tomorrow already. I was supposed … [Read more…]

Yesterday, I had a day off and just did a lot of nothing (although I did do some cleaning and tidying). Of course, it was another day when Colin’s body decided to rebel again, and he just began to feel very ill again. His blood pressure went way down, he felt hot on his head … [Read more…]

Weekends are the most difficult time for Colin I think. Several of his mates go home over weekends, and without visitors, he would stay in bed all day not being able to do anything at all. Luckily, I really want to spend time with him, and the weekends are the prefect days. During the week … [Read more…]

Friday today, and I went to see Colin this afternoon because I was just too worried about him. I phoned ahead, and the nurses said I could visit as long as I was diligent with the hand cleaning and sanitising in between, and wore a face mask to avoid spreading my germs to the patients. … [Read more…]